Research Project on Privacy Concerns with Health Data
Who are we?
Tian Xu, Ph.D student in the Department of Information Science at CU Boulder, researcher in the Internet Rules Lab and Too Much Information Lab
Casey Fiesler - Assistant Professor in Information Science at CU Boulder and Director of the Internet Rules Lab
Stephen Voida, Assistant Professor in Information Science at University of Colorado Boulder and Director of the Too Much Information Lab
What is the study about?
The purpose of this study is to understand the privacy concerns of people regarding health data sharing with different stakeholders in the context of chronic illnesses. With understanding the concerns, we expect to contribute to technology design involving privacy control of people with chronic illnesses.
What do we need?
We are looking for people who are 18+ and are experiencing chronic illness.
You will have the choice of completing the interview through voice chat, video chat (remotely), or in-person (in Boulder, CO). The interviewer will only be recording audio from the interviews.
The interview will be 30-90 mins long. Interview participants will be compensated for their time with a $20 gift card.
What do you need to do?
Please fill out the form below to let us know you are interested! (Or you may email the lead researcher directly.) We will get in touch with you to schedule an interview or will let you know if we already have enough participants. You can also use the form below to ask questions about the study. If, based on your answers, you do not qualify for this study, we will immediately destroy any information that you provided us. If you have any questions, you can reach the lead researcher at tixu6250@colorado.edu.